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Disability "in-justice": the benefits and challenges of "yarning" with young people undergoing diagnostic assessment for fetal alcohol spectrum disorder in a youth detention center.

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dc.contributor.authorHamilton S.
dc.contributor.authorReibel T.
dc.contributor.authorMaslen S.
dc.contributor.authorWatkins R.
dc.contributor.authorJacinta F.
dc.contributor.authorPassmore H.
dc.contributor.authorMutch R.
dc.contributor.authorO'Donnell M.
dc.contributor.authorBraithwaite V.
dc.contributor.authorBower C.
dc.date.accessioned2024-11-19T05:29:56Z
dc.date.available2024-11-19T05:29:56Z
dc.date.copyright2020
dc.date.issued2021-02-15en
dc.description.abstractUndertaking research with young people presents an array of methodological challenges. We report the findings from a qualitative study that took place alongside a fetal alcohol spectrum disorder (FASD) prevalence study among detainees in Australia. Of 38 participants, 27 were Aboriginal youth. Interviews were conducted using "social yarning" and "research topic yarning," an Indigenous research method which allows for data collection in an exploratory, culturally safe way. A complex interplay emerged between social yarning and research topic yarning which provided a space to explore responsively with participants their experiences of FASD assessments. Flexibility, including language adaptation and visual descriptions about assessments, was utilized to assist participants recall and retell their experiences. There were, however, challenges in gathering data on the assessment experiences of some participants. We describe how employing a "yarning" method for collecting data could benefit children and young people undergoing neurodevelopmental assessments in the future.
dc.identifier.citationQualitative Health Research. Vol.30(2), 2020, pp. 314-327.
dc.identifier.doihttps://dx.doi.org/10.1177/1049732319882910
dc.identifier.institution(Hamilton, Reibel, Watkins, Jacinta, Passmore, Mutch, O'Donnell, Bower) Telethon Kids Institute, West Perth, WA, Australia
dc.identifier.institution(Maslen) University of Canberra, Canberra, Australian Capital Territory, Australia
dc.identifier.institution(Braithwaite) Australian National University College of Asia and the Pacific, Canberra, Australian Capital Territory, Australia
dc.identifier.pubmedid31691628 [https://www.ncbi.nlm.nih.gov/pubmed/?term=31691628]
dc.identifier.urihttps://lowitja.intersearch.com.au/handle/1/569
dc.relation.ispartofQualitative Health Research
dc.subject.keywordsDisability
dc.subject.keywordsSubstance use
dc.subject.keywordsJustice system
dc.titleDisability "in-justice": the benefits and challenges of "yarning" with young people undergoing diagnostic assessment for fetal alcohol spectrum disorder in a youth detention center.
dc.typeArticle
dc.type.studyortrialQualitative study

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