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Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people.

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dc.contributor.authorLuke J.
dc.contributor.authorDalach P.
dc.contributor.authorTuer L.
dc.contributor.authorSavarirayan R.
dc.contributor.authorFerdinand A.
dc.contributor.authorMcGaughran J.
dc.contributor.authorKowal E.
dc.contributor.authorMassey L.
dc.contributor.authorGarvey G.
dc.contributor.authorDawkins H.
dc.contributor.authorJenkins M.
dc.contributor.authorParadies Y.
dc.contributor.authorPearson G.
dc.contributor.authorStutterd C.A.
dc.contributor.authorBaynam G.
dc.contributor.authorKelaher M.
dc.date.accessioned2024-11-19T05:30:13Z
dc.date.available2024-11-19T05:30:13Z
dc.date.copyright2022
dc.date.issued2022-09-06en
dc.description.abstractGlobally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014-2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68-0.80], <0.001) and attended at lower rates (IRR 0.85 [0.78-0.93], <0.001). Within this population, adults, females, remote residents, and those presenting in relation to cancer or prenatal indications experienced the greatest disparity in access. These results provide important baseline data related to disparities in access to clinical genomics in Australia.Copyright © 2022, The Author(s).
dc.description.grantThe authors acknowledge the project funders; including the National Health and Medical Research Council (Australia): 114737 and Lowitja Institute: 1364
dc.identifier.citationNature Communications. Vol.13(1), 2022.
dc.identifier.doihttps://dx.doi.org/10.1038/s41467-022-32707-0
dc.identifier.institution(Luke, Dalach, Ferdinand, Kelaher) Centre for Health Policy, The University of Melbourne, Melbourne, VIC, Australia
dc.identifier.institution(Tuer, Savarirayan, Stutterd) Victorian Clinical Genetics Services, Murdoch Children's Research Institute, Parkville, VIC, Australia
dc.identifier.institution(Tuer, Massey) Machado Joseph Disease Foundation, Alyangula, NT, Australia
dc.identifier.institution(McGaughran) Genetic Health Queensland, Royal Brisbane and Women's Hospital, Brisbane, QLD, Australia
dc.identifier.institution(McGaughran) School of Medicine, University of Queensland, St Lucia, QLD, Australia
dc.identifier.institution(Kowal) Alfred Deakin Institute for Citizenship and Globalisation, Deakin University, Geelong, VIC, Australia
dc.identifier.institution(Massey) James Cook University, Townsville, QLD, Australia
dc.identifier.institution(Garvey) Wellbeing and Preventable Chronic Disease Division, Menzies School of Health Research, Charles Darwin University, Casuarina, NT, Australia
dc.identifier.institution(Dawkins) School of Medicine, The University of Notre Dame Australia, Sydney, NSW, Australia
dc.identifier.institution(Jenkins) Immunology, Walter Eliza Hall Institute, Parkville, VIC, Australia
dc.identifier.institution(Paradies) School of Humanities and Social Science, Deakin University, Burwood, VIC, Australia
dc.identifier.institution(Pearson, Baynam) Telethon Kids Institute and Division of Paediatrics, Faculty of Health and Medical Sciences, University of Western Australia, Perth, WA, Australia
dc.identifier.institution(Stutterd) Department of Paediatrics, University of Melbourne, Parkville, VIC, Australia
dc.identifier.institution(Baynam) Genetic Services of Western Australia, Western Australian Department of Health, Perth, WA, Australia
dc.identifier.institution(Baynam) Western Australian Register of Developmental Anomalies, Western Australian Department of Health, Perth, WA, Australia
dc.identifier.pubmedid36002448 [https://www.ncbi.nlm.nih.gov/pubmed/?term=36002448]
dc.identifier.urihttps://lowitja.intersearch.com.au/handle/1/674
dc.relation.ispartofNature Communications
dc.subject.keywordsGenetics
dc.titleInvestigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people.
dc.typeArticle

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