Murru minya - informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study.
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Date
2023-03-04
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Affiliation(s)
(McGuffog, Kong, Bryant, Collis, O'Mara, Ridgeway, Kennedy) School of Medicine and Public Health, The University of Newcastle, Callaghan, NSW, Australia
(McGuffog, Bryant, Collis, Hobden, Kennedy) Hunter Medical Research Institute, The University of Newcastle, New Lambton, NSW, Australia
(Chamberlain) Judith Lumley Centre, School of Nursery and Midwifery, La Trobe University, Melbourne, VIC, Australia
(Chamberlain) Centre for Health Equity, School of Population and Global Health, The University of Melbourne, Melbourne, VIC, Australia
(Hughes) Rural and Remote Health, College of Medicine and Public Health, Flinders University, Nhulunbuy, NT, Australia
(Kong) ENT Department, Hunter Valley Private Hospital, Newcastle, NSW, Australia
(Wenitong) Lowitja Institute, Carlton, VIC, Australia
(Brown) Indigenous Genomics, Australian National University, Canberra, ACT, Australia
(Brown) Telethon Kids Institute, Nedlands, WA, Australia
(Eades) Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, VIC, Australia
(Griffiths) Centre for Big Data Research, University of New South Wales, Sydney, NSW, Australia
(Hobden) Health Behaviour Research Collaborative, School of Medicine and Public Health, The University of Newcastle, Callaghan, NSW, Australia
(Walter) School of Social Sciences, University of Tasmania, Hobart, TAS, Australia
(McGuffog, Bryant, Collis, Hobden, Kennedy) Hunter Medical Research Institute, The University of Newcastle, New Lambton, NSW, Australia
(Chamberlain) Judith Lumley Centre, School of Nursery and Midwifery, La Trobe University, Melbourne, VIC, Australia
(Chamberlain) Centre for Health Equity, School of Population and Global Health, The University of Melbourne, Melbourne, VIC, Australia
(Hughes) Rural and Remote Health, College of Medicine and Public Health, Flinders University, Nhulunbuy, NT, Australia
(Kong) ENT Department, Hunter Valley Private Hospital, Newcastle, NSW, Australia
(Wenitong) Lowitja Institute, Carlton, VIC, Australia
(Brown) Indigenous Genomics, Australian National University, Canberra, ACT, Australia
(Brown) Telethon Kids Institute, Nedlands, WA, Australia
(Eades) Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, VIC, Australia
(Griffiths) Centre for Big Data Research, University of New South Wales, Sydney, NSW, Australia
(Hobden) Health Behaviour Research Collaborative, School of Medicine and Public Health, The University of Newcastle, Callaghan, NSW, Australia
(Walter) School of Social Sciences, University of Tasmania, Hobart, TAS, Australia
Year
2023
Citation
BMJ Open. Vol.13(2), 2023.
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BMJ Open
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Abstract
Introduction Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research. Methods and analysis Murru Minya will be a large-scale national study to examine the implementation of ethical processes in Aboriginal and Torres Strait Islander health research. A mixed-methods design will be used in four baarra (steps). The first three baarra will collect knowledge, experiences and wisdom from three key groups: Aboriginal and Torres Strait Islander communities, research academics, and Human Research Ethics Committees using online surveys, yarning, and semistructured interviews. This knowledge will inform the final baarra of developing a set of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research into the future. Ethics and dissemination Ethical approval for this research project has been granted by National, State and Territory Human Research Ethics Committees. This research has been developed in collaboration with Aboriginal and Torres Strait Islander researchers, Aboriginal Community Controlled Health Organisation representatives, Aboriginal community members, the National Health Leadership Forum, and Aboriginal and Torres Strait Islander research team. The knowledge translation plan will be integrated and revised throughout the project as partnerships and engagement with Aboriginal and Torres Strait Islander communities continue. All findings will be shared with peak Aboriginal research bodies and Aboriginal and Torres Strait Islander communities in ways that are meaningful to them.Copyright © 2023 BMJ Publishing Group. All rights reserved.
PubMed ID
36764710 [https://www.ncbi.nlm.nih.gov/pubmed/?term=36764710]
Type
Article
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Research ethics